10/12/2015 • Walt Disney World •
I am a parent of a child born with Fragile X Syndrome. My son has challenges in all aspects of his life, and easily becomes overwhelmed by his environment. That can lead to difficulty with communication and the dreaded behavioral meltdown. He was born with Disney loving parents who are determined to make our Disney trips a consistent part of our lives. Are we nuts? Perhaps. I tend to think of my family as goal oriented, determined, hopeful, persistent and perhaps, at times, incredibly brave. We were blessed with 2 additional “typically developing” children. We CHOOSE to live as “typical” of a family life as we possibly can. Why would we knowingly bring a child who has such strong sensory (especially auditory) processing challenges to an environment with an overwhelming amount of input? As I mentioned above, when we became engaged at Walt Disney World, and my fiance’ (husband now) […]
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